We got the opportunity to hang out with our friend Oakley and her kids from Nothing Down About It for an afternoon of fun and photos in their newly built home. Let me tell you there is truly nothing down about this family. We absolutely love them! Nothing Down About It is a blog that was started by mom Oakley to document her family and their experiences with her son Welles who was born with an extra chromosome. She created her blog to reach out to other mothers with children with special needs to create a community of love and support.
As we started our journey with our own blog we wanted to make sure that we shared stories and inspiration from people that we admire and this family was at the top of our list. The love and energy of between these three siblings Scarlet, Welles and Aimes would tug at anyones heart strings, their mom Oakley is one amazing momma. It was a pleasure to spend an afternoon in their home and get to know them all a little better.
We asked Oakley to share a little about her family with a little Q&A
Q: Tell us a little about your family and your everyday life.
A: Our every day life is filled with chaos. It a lot of dirty diapers, wrestling kids, making messes, cleaning messes, dance parties (Welles’ favorite daily activity) and running kids around. Having all three so close in age makes for a lot of commotion.
Q: Your blog is inspiring to so many. What made you decide to be an advocate for Downs Syndrome and share your experience?
A: I knew very early on that Welles and I were meant for each other. I really felt like we had some sort of a deal in heaven… he would come and bless our family and I would be his mouthpiece and cheerleader. I felt like we were a perfect match and I promised him, as I held him in the NICU, that I would be his advocate. I will fight to the ends of the earth to share his goodness with the world. People have crazy misconceptions about Down syndrome and I want to help people see how beautiful this diagnosis really is.
Q: Tell us about the special bond and relationship your kids have.
A: Scarlett, Welles and Ames are such a perfect trio. I can’t even imagine them not having each other because the rely on one another all day long. Scarlett is constantly hovering and protecting them. She’ll rush into the other room to tell me what they’re eating and make sure it’s okay. Welles gives love to whichever sibling needs it at the moment. If it’s a hard day for Scarlett, he’ll go lay on her lap and give her kisses. Ames is the best little caboose. He follows them around laughing at their every move making them feel like rock stars. They all have an incredibly special connection that I think is unique and beautiful.
Q: We recently learned how you came up with the name Welles can you tell us a little about that?
A: Welles was born on 9/11. While we were staying at the hospital, stumped on a name, my sister texted us a story on ESPN called “The man in the red bandana”. It was about a man named Welles Crowther who saved many people from the twin towers. His story was touching and heroic. We thought it was perfect for our own little hero boy.
Q: Tell us a little bit how you came up with your blog Nothing Down About It and what it means to you.
A: One day when I was considering doing a blog, that phrase kept popping up in my head, over and over. So I searched Instagram to see if it had been taken. To my surprise (thinking it was so catchy), it was open. So I got the IG account and bought the domain for my blog. It just sums it all up for me. There is nothing down about my son or other individuals with Down syndrome. In fact, we like to call it “Up syndrome” in our family!
We truly cannot say enough good things about this adorable family. Be sure to check out her blog to learn more!
THE LULU AND ROO TEAM